United Mitochondrial Disease Foundation

Have you completed the #POLG survey? Patients and caregivers can help shape the future of #mito research by sharing their experiences in this survey from UMDF, @MitoAction, @PolGFoundation, and International Mito Patients. Complete the survey by 10/31.

Wisconsin came together to raise awareness and funds for #mito research! Take a look at the highlights from their Energy for Life Walk at Fox River Park.

Based on patients who have completed the ClinGen Survey in mitoSHARE, approximately 60% of people with suspected #mitochondrialdisease also report vision loss. This #BlindnessAwarenessMonth, explore UMDF’s types of #mito pages to learn more.

There’s just ONE Energy for Life Walk left for 2026 in Orlando, FL! Join us on Saturday, November 7 at Bill Frederick Park (Pavilion 6 - 3401 South Hiawassee Road) at 9 AM ET as we come together to raise awareness and funding for #mitochondrialdisease.

Reminder: The next Ask the Mito Doc webinar is on Tuesday, October 27 at 7 PM EST. Join us to learn more about Understanding Access to Therapies: Compassionate Use, Expanded Access, and Off-Label Treatment in #MitochondrialDisease. To register, visit:

A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community.

Congratulations to Dr. Bruce Cohen of @AkronChildrens on receiving the Hower Award from the @ChildNeuroSoc! This recognition honors Dr. Cohen’s contributions to the field and his continued dedication to improving the lives of individuals affected by #mitochondrialdisease.

We’re grateful to everyone who joined us for UMDF’s Energy for Life Walk – Kansas City! Every step you take helps raise awareness and support the #mito community. Scroll through to relive some of our favorite moments from this special day!

Congratulations to @Mighty_Tx and @ucb_news on being named Industry Innovator Honorees as part of @RareDiseases Rare Impact Awards! This well-deserved recognition celebrates both companies’ ongoing contributions to advancing care for people living with #mitochondrialdisease.

Thank you to UMDF Ambassador, Jenny Hobbs, for sharing her #mito journey and helping spread the word about the upcoming Energy for Life Walk – Charlotte on @wcnc this morning!  There’s still time to join us and register for UMDF's Charlotte Walk on 10/24.

There's one final stop left on UMDF’s Biorepository Roadshow with @combined_brain for 2026! Patients with a confirmed #mitochondrialdisease can participate on December 3-4 in Denver, CO. Email registry@umdf.org for availability and to secure your spot.

This #BlindnessAwarenessMonth, we’re highlighting the impact of eye & vision challenges in the #mitochondrialdisease community. According to mitoSHARE, 96% of respondents report at least one eye or vision problem. Join mitoSHARE to share your experiences.

Find your support circle at one of UMDF's weekly Virtual Support Meetings. Check our events calendar for log in details and to connect with patients and families in the #mitochondrialdisease community.

A big thank you to @ucb_news, @Drive4Modern, @UPMC, and @PNCBank for sponsoring this year’s National #Mito Movement Challenge! Thanks to everyone who participated, we exceeded our goal of raising $30,000 in honor of UMDF’s 30th anniversary!

A big thank you to everyone who came out to support UMDF's Energy for Life Walk – Indianapolis! Your participation helps raise awareness and funds for the #mito community. Take a look at some of our favorite moments from the day and let's celebrate this incredible community.

Join UMDF for a new virtual support group meeting on Oct. 21, at 12 PM ET on Rare Disease Drug Access. Designed for #mito patients and caregivers, this session will cover prior authorizations, navigating claim denials, the appeals process, and more.

Missed this year’s #MitoMed 2026 family programming in Orlando, FL? You can now catch up on the recorded sessions! Explore topics like Approved Therapies Coverage Landscape and Living with Leigh Syndrome: Care, Science, and Support Together, plus more.

Do you have questions about access to therapies and treatments for #mitochondrialdisease? Join us for our Ask the Mito Doc webinar on Oct. 27 at 7 PM ET as we explore Understanding Access to Therapies in Mitochondrial Disease. Register:

Support is just a click away! Join one of UMDF's upcoming Virtual Support Meetings where patients and families can connect, share experiences, and find encouragement in the #mitochondrialdisease community. Check our events calendar and join us.

October is #BlindnessAwarenessMonth. Vision issues can be an important part of the #mitochondrialdisease experience. In our mitoSHARE community, 54% of participants have reported a major vision issue, an optic nerve abnormality, or a retinal abnormality.