Susannah Fox@SusannahFox
If you are looking for blue skies, you won’t find them in DC these days, but you will find me on bluesky as SusannahRFox
42231.5K
Susannah Fox
@SusannahFox
Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her. SusannahRFox on bluesky &🧵& insta & gmail
978 Following37.2K Followers41.2K Posts
- Susannah Fox@SusannahFoxSusannah FoxRT @JMcCannWriter: Check out my favorite #historicalnovels about ordinary people overcoming extraordinary obstacles via @Shepherd_books. #histnov #fiction #justread #inspiration #motivationMonday040408
- Susannah Fox@SusannahFoxSusannah FoxRT @ssrs_research: 63% of adults living in #raredisease households have, in the past year, seen a doctor or other health care provider, online or via a telehealth appointment. Study conducted by SSRS for @SusannahFox, @ArchangelsMe & Association on Aging in NY.020375
- Susannah Fox@SusannahFoxSusannah FoxRT @ssrs_research: 📢#RareDisease is NOT rare. 📢New national survey finds 8% of U.S. households are directly affected by rare disease. SSRS is proud to work w/ @SusannahFox , @ArchangelsMe & the Association on Aging in NY on this study: #RareDiseaseDay2025010351
- Susannah Fox@SusannahFox.@NIH + @US_FDA canceling their #RareDiseaseDay event was a punch in the gut for a community that is too often dismissed or forgotten. Thanks to @isabellacueto for sharing our new research & my disappointment
0691.1K - Susannah Fox@SusannahFox50% of people living in a #RareDisease household have, in the past year, gone online to find other people who might have health concerns similar to their own. Of those, 8 in 10 were successful in finding #PeerHealthAdvice011267
- Susannah Fox@SusannahFoxSusannah FoxRT @ssrs_research: View the findings from the first probability-based national survey to measure the #raredisease population. SSRS is proud to work w/@SusannahFox , @ArchangelsMe & The Association on Aging in New York to bring awareness to this important research:040342
- Susannah Fox@SusannahFoxNEW SURVEY: 15% of U.S. households are affected by rare disease or an undiagnosed illness. Their lives are characterized by extreme stress, often matched by their resourcefulness.
124427 - Susannah Fox@SusannahFoxPosts @SusannahFoxThis is the first probability-based national survey measuring the rare disease and undiagnosed illness population. Grateful to @ssrs_research + @ArchangelsMe + Association on Aging in New York for their partnership.
001269 - Susannah Fox@SusannahFoxPeer advice from a fed, for other feds: A guide to using Signal for government workers010272
- Susannah Fox@SusannahFoxLong shot request for help: my friend Brianna is visiting Boston and forgot her Tandem mobi pump cartridges at home. No one can ship before Monday afternoon. Is there anyone anywhere in driving distance she can get one from today? #WeAreNotWaiting #DOC2431.6K
- Susannah Fox@SusannahFoxPosts @SusannahFoxUPDATE: Thanks to the diabetes community for coming through. Brianna is on her way to pick up a cartridge and has two back-up contacts if that falls through (including one person who works for Tandem)002337
- Susannah Fox@SusannahFoxPosts @SusannahFoxA consequence of being late to a platform is that my friend Susannah Fox Jr. nabbed our name for her handle, so I have to use my middle initial. I will be forever indebted to her for giving me our domain name005301
- Susannah Fox@SusannahFoxChris Arndt is a former financial analyst who has run the numbers. If you are worried about government debt, vote for @KamalaHarrisChristopher Arndt @cfarndtOn the subject of the federal government's deficit and debt, there's a lot of heat out there and not a lot of light. As well, many people have their facts on this issue exactly backwards, especially when identifying the source of the problem. (cc @elonmusk ) So, I published a short video: "If you are worried about government debt, who should you vote for?" #debt, #deficit, #ElectionTwitter, #HarrisWalz2024, #Trump103765
On the subject of the federal government's deficit and debt, there's a lot of heat out there and not a lot of light. As well, many people have their facts on this issue exactly backwards, especially when identifying the source of the problem. (cc @elonmusk ) So, I published a short video: "If you are worried about government debt, who should you vote for?" #debt, #deficit, #ElectionTwitter, #HarrisWalz2024, #Trump4124027.6K- Susannah Fox@SusannahFoxPinching myself to believe I’m here in Vienna, Austria, to hear myth busting @Liz_ORiordan talk about her journey as a breast surgeon, cancer patient, and caregiver for her mother
1010526 - Susannah Fox@SusannahFox“How can this collaboration move from individual patient engagement (shared decision making) to structurally involving the patients collectively?” - question asked at #ICHOM2024114393
- Susannah Fox@SusannahFox“My get-outraged moment was when I could move money around the world with an ATM card but I could not check in for my cancer treatment with a similar card” - @stales at #ICHOM2024
148948 - Susannah Fox@SusannahFoxPosts @SusannahFoxIf you share this outrage - or curiosity - check out a company I advise:002304
- Susannah Fox@SusannahFox“How can we reduce the trust and transparency gap that we have in health care?” - question asked of a panel at #ICHOM2024002348
- Susannah Fox@SusannahFox“What criteria are helpful for choosing a patient representative on your solution design team?” - question asked at #ICHOM2024 Any reactions? Thoughts?101475
- Susannah Fox@SusannahFoxSusannah FoxRT @Nature: Vaccines have granted families in wealthy countries the luxury of forgetting what measles, polio, rubella, and other preventable diseases are like. We're looking at how many millions of lives vaccines have saved. Read the full story:01970205K
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